Wednesday 4 June 2014

Family Matters...

I started to look outside of myself and observe more closely my children's habits and toileting. I began to wonder if I hadn't passed on the genetic pre-disposition for Coeliac disease and raised my concerns with my GP, she wasn't concerned and actually that made me more so (they don't call us the worried well for nothing). I left it a bit longer and then went to see another GP at my practice and she recommended we have the boys blood tested for the antibodies relevant to Coeliac disease.

I took the forms straight to the hospital walk-in Phlebotomy unit as the GP advised and we waited to be tested, only to be told that due to their ages my children needed numbing cream on their arms an hour prior to testing and that the Children's unit would need to do the tests as they employed specialist staff to keep the experience as calm as possible.

We went to see the unit and made an appointment for 2 weeks later and then called back at the doctors to get the prescriptions for the cream we needed.

The specialist nurses (there were three in the room) were brilliant with both boys - the cream worked wonders and only my youngest got niggly when he saw some blood on his arm where it was flowing really well. They were distracted with i-pads and other toys and I got to hold them both in a cuddle to keep them happy. Nanny sat with the other whilst each was having their blood taken.
The boys and I on a trip to London recently (Choccywoccydoodah does a fab GF Lemon Cake)

3 weeks later we had the test results and I'm pleased to say that I haven't passed on Coeliac disease to either boy (at this stage anyway). To make mealtimes easier they're eating a fair amount of GF food and haven't noticed the difference - slowly my kitchen is becoming GF altogether and when the boys both have free school dinners next year, there will be even less risk of contamination at home.

Both boys are engaged and interested in their mummy's poorly tummy and I'm going to keep an eye out in case they show any signs of the disease triggering.

On another note both my sister and father have had positive blood tests and biopsies and are starting their gluten free lifestyles in their own time. It's going to be interesting to see how we all cope and I'm sad they have to make the changes too.

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